4/2/2005 4:37:00 PM

posted May 8, 2012, 7:45 AM by Becca K.
Natalie is turning fearless on me.  I guess that this is a good thing, considering how timid she's been.  Keeping in mind that she just had a liver transplant 7 short weeks ago, I guess it's amazing that she tried climbing in the fridge today!  I had the door opened while arranging last nights grocery items and she tried climbing up the shelves!!!

Biliary drain tube saga:

We have had to replace the tube 4 times now in the last 3 weeks. It's getting a little frustrating. Grrr....

And we had to make the drive (2 hours each way) back to Children's 4 times this week alone. 

Wed. - Replace tube.  Wed. night tube leaking already.

Thursday - Clinic visit day.  While she is no longer on the growth charts (she fell off - but since she was in the 1st percentile we saw it coming) her doctors are pleased with her liver. Her liver numbers look good again. Bili is normal, GGT is good - but with the bile tube leaking (thinking prograf leaked out with some bile), her prograf is too low so we need to get that fixed...
IR can't fit us in, so new tube is scheduled to be placed Friday.  

Friday - Drive back to Chicago.  Have larger bile tube placed.  Natalie does GREAT with sedation and we are outa' there by 11:30am.

Today - Go back to CMH.  Natalie's prograf level (immunosuppresant) was too low Thursday.  Dose was increased Thursday and we had to go in for a blood draw today.
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