The life and times of a liver transplant family.
I’m the mom to Natalie.
Natalie had a liver transplant in 2005, receiving a portion of my liver. She was born with Biliary Atresia.
I gave Natalie a part of my liver, she gave me her heart.
We are good at sharing.
This website is a collection of medical updates and letters to my daughter.
This is her story…

Recent Journal Entries 
  • The most recent posts are shown below.  To read past journal entries click Journal or Archived Journal Entries.
  • 11 years post transplant
    An update of fantastic proportions.

    We had an AWESOME transplant checkup appointment yesterday for Natalie.

    The Chicago snow was horrible -10 miles to the south of us!!! But our route to the hospital was clear for 2 hours!!

    First up - phlebotomy. Natalie had an Amazing phlebotomist/uber driver/Deacon that talked her ear off and set her at ease before her 6 vials of blood were taken. And her liver is happy. Labs look really really good.

    And then we were off to ultrasound. We had another amazing tech. She took her time and explained everything she was doing to Natalie. Natalie is 12 now. And when you are 12, they start talking more to the patient, than their families. As a means of transitioning.

    1. The two little cysts on her kidneys haven't changed in 3 years. Itty bitty little fellas.
    2. Her body has effectively created it's own by-pass/ shunt of the portal vein blockage. They actually refer to it in her chart as "A case of a spontaneous splenorenal shunt."  And I held my tears in.
    3. Height = 5'6" and weight is completely appropriate. 
    4. Spleen = still big.  Keep avoiding contact sports and doing what you are doing (volleyball, track, swimming).
    5. Natalie made her first medical decision - to stay enrolled in a study, where they can review her care and charts and use her experiences to help others.  She would not let me take a picture of the moment.
    6. Then we learned that Natalie is stable enough to not have to come back for a whole year!! (We've waited 11 years to hear that.)

    God is so good.
    Posted Feb 26, 2016, 8:13 AM by Becca K.
  • A note from Natalie's Teachers
    I nominated Natalie's teachers for PTA Educator of the year.

    This was their response.

    I am sobbing.  All we ever wanted was for her to survive.  Great grades and the pressure therein were not important to her father and I.  This is more than we could have ever hoped or prayed for. 

    It has been our pleasure, no, our privilege, to work with your daughter! She is a remarkable, outstanding young lady.  She not only makes each day here at Mary Morgan a better for us to come too; but she inspires us all to be better people. She helped remind us all that every day is a gift, and that giving is so very important. She showed others that, “we never know what people are going through, or have gone through,” and because of this we need to be sensitive to others and their feelings.

    As teachers we are always looking for a way to inspire and engage (hard to do sometimes), but when someone like Natalie steps up in the way that she did – all the lesson plans in the world couldn’t compare. She is a teachers dream, and you should be very proud of her (I know you are!!!), We are so very proud of her! She truly makes a difference and positively impacts this class, school, community… world! (not even overstating that)

    THANK YOU! Thank you for the nomination, but most importantly – thank you for giving us the privilege to work with Natalie every day! It is students like her, and parents like you, that are the true “award” in teaching!

    Posted Apr 22, 2015, 10:22 AM by Becca K.
  • Easter and 4-H
    Last night at 4-H, during attendance the kids were supposed to say their favorite thing about Easter, instead of just saying “Here.”

    All of the kids were saying, “candy” “the Easter bunny” “hiding eggs...” that sort of thing.

    And then they got to my kid.

    “Jesus rising on the third day,” was her response.
    Posted Mar 10, 2015, 8:12 AM by Becca K.
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