4/27/2005 9:21

posted May 8, 2012, 8:17 AM by Becca K.
No more PTC line (the bile tube in her tummy is now gone)

I went in to wake Natalie up this morning and found her sitting in a pool of bile.  I quickly assessed the situation and found her tube (which, before bedtime was inside of her) now next to her.  I left Natalie in her bed, she's not too happy about this decision, and call Jason.  He calms me.  I then scoop up Natalie, change her, and take her down to the kitchen.  As I am getting her breakfast ready I page the GI fellow on call at Children's.  It';s our old friend Dr. Kohli.    Natalie at this point is still not a happy camper; I am not getting her French toast ready as fast as she would like!!!

Dr. Kohli says that he will have our team call us, and advises us to just keep a gauze pad on her tummy to manage the bile flow.  Grandpa K(who was to be our babysitter for the day) arrives.  A few minutes later, Jason also comes home.  Jason and I change Natalie's dressing, which, after 20 minutes, is already full of bile.  Dave from Children's calls.  I can tell that is happy as he says, "I hear that you are blaming Natalie for taking out her tube!  Well congrats!!!"  Phew!

Since we were already scheduled for a clinic appointment in Chicago tomorrow, they are just planning on seeing us then.  They may need to put in a stitch on her tummy, but since her labs last week were fantastic, they think that this is OK.  Double phew!

So Grandpa K (bless his heart, I think he got more than he bargained for) is babysitting and Natalie is napping.  What a morning!!!