Organ Transplantation is like its own little world. And in this world a different language is spoken. Here, we offer some help in navigating the new world. Many of the links will take you to external sites.

• Biliary Atresia Articles

• Click to find out what is biliary atresia? (The Liver Disease Natalie was born with)

• Liver Families - Online support group for biliary atresia and other pediatric liver diseases and liver transplant.

• C.L.A.S.S. -Children's Liver Association For Support Services (C.L.A.S.S.).

Living Donor Resource

            http://www.livingdonorsonline.org/

Our Transplant Center - http://www.childrensmemorial.org/depts/siragusa/default.aspx

            Liver Transplant Program - http://www.childrensmemorial.org/depts/siragusa/livertrans/overview.aspx

            Liver Team - http://www.childrensmemorial.org/depts/siragusa/livertrans/liverteam.aspx

            Brilliant Surgeon - http://www.former-surgery.northwestern.edu/content/ShowMemberPage.asp?typ=faculty&mbr_ik=61

            http://www.transplantbuddies.org/library/ptld.html

http://en.wikipedia.org/wiki/Post-transplant_lymphoproliferative_disorder

http://www.lymphomation.org/types.htm          

            http://www.childrensmemorial.org/depts/siragusa/transplant-surgery/what-is-portal-hypertension.aspx

            Surgical options - http://www.childrensmemorial.org/depts/siragusa/transplant-surgery/surgical-options.aspx

            Video with our surgeon talking about the risks- http://www.childrensmemorial.org/media.aspx?media=28

http://www.childrensmemorial.org/media.aspx?media=30

Distal Splenorenal Shunt Procedure

            http://www.childrensmemorial.org/depts/siragusa/transplant-surgery/portal-hypertension-research-articles.aspx

 

UNOS

PTSD - It is real.  It sucks.  And there is no reason to feel shame.

 

Support Groups:

1.   C.L.A.S.S. - Children's Liver Association For Support Services

2.   Liver Families :: Pediatric liver disease, biliary atresia and ...