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LiverLinks

Online support group for biliary atresia and other pediatric liver diseases and liver transplant.

 
Children's Liver Association For Support Services (C.L.A.S.S.).
 
 
Children's Memorial Hospital, Chicago, one of the top pediatric hospitals in the country, leads in patient care, education, research and advocacy.

Organ Transplantation is like its own little world.  And in this world a different language is spoken.  Here, we offer some help in navigating the new world.  Many of the links will take you to external sites.

 

Click to find out what is biliary atresia? (The Liver Disease Natalie was born with)
 

Living Donor Resource

            http://www.livingdonorsonline.org/

 

Our Transplant Center - http://www.childrensmemorial.org/depts/siragusa/default.aspx

            Liver Transplant Program - http://www.childrensmemorial.org/depts/siragusa/livertrans/overview.aspx

            Liver Team - http://www.childrensmemorial.org/depts/siragusa/livertrans/liverteam.aspx

            Brilliant Surgeon - http://www.former-surgery.northwestern.edu/content/ShowMemberPage.asp?typ=faculty&mbr_ik=61

 
PTLD

            http://www.transplantbuddies.org/library/ptld.html

http://en.wikipedia.org/wiki/Post-transplant_lymphoproliferative_disorder

http://www.lymphomation.org/types.htm          

 
Portal Vein Hypertension

            http://www.childrensmemorial.org/depts/siragusa/transplant-surgery/what-is-portal-hypertension.aspx

            Surgical options - http://www.childrensmemorial.org/depts/siragusa/transplant-surgery/surgical-options.aspx

 
Rex Shunt

            Video with our surgeon talking about the risks- http://www.childrensmemorial.org/media.aspx?media=28

http://www.childrensmemorial.org/media.aspx?media=30

Distal Splenorenal Shunt Procedure

            http://www.childrensmemorial.org/depts/siragusa/transplant-surgery/portal-hypertension-research-articles.aspx

 

UNOS

PTSD - It is real.  It sucks.  And there is no reason to feel shame.

 

Support Groups:

1.   C.L.A.S.S. - Children's Liver Association For Support Services

2.   Liver Families :: Pediatric liver disease, biliary atresia and ...

 

 
 
Oh, oh, and how about some pictures!!!
Here is what living donor looks like:
 
 
 
 
 

See the white helmet in the center of the logo?

That’s on the head of our Nataliebear, riding her ATV off into the sunset! Miracles do happen. Everyday.

Our Favorite Quote

"Life is not about waiting for the storm to pass, it is about
Learning to Dance in the Rain."

Favorite Bible verse:

"I can do all things through Him who gives me strength."
Philippians 4:13

Other Neato Sites:

Copyright Notice:

Copyright 2004-2012 by R. Ketter

Copying and pasting my work from this website may cause your fingers to fall off.  It might not, but do you really want to chance it?