Post date: Mar 19, 2011 4:34:27 PM
We are still home!
We had an appointment at Children's yesterday. Natalie was in a good mood. Her tummy was nice and relaxed, so Dr. Alonzo was able to feel her liver and spleen, which means that the ascites (fluid retention) is gone for the most part. We are still doing the nightly feeds, but in a much smaller dose. The food goes out just as fast as it comes in to her!!! But that means that she's not absorbing the nutrients. This is no big surprise - it all comes with the liver disease.
No answers about the transplant. They have indicated that it MAY take place in the first half of the month, which I think we already knew. We are still waiting on Northwestern at this point.
We talked briefly about what to expect after the transplant. They said to expect Natalie to be inpatient (in the hospital walls) for one month following. We know that we are going to have a LONG road ahead.
On a lighter note, Miss Natalie stood in her crib and started cruising along the crib handles!