4/29/2005 10:51

Post date: May 8, 2012 3:20:09 PM

The tube is back in. I guess that that is OK. A part of me wanted to be done with it. But she was losing so much bile that her poop had turned white. So they did an ultrasound and there are still pools of bile, must likely caused by "sludge." My poor kid has sludge;-).

We had labs drawn at 7:45. Went to the cafeteria and gave her her meds. Went up to clinic, but the doctors were running late. So we (Natalie and I) practiced walking the halls, and finally got seen around 10. They sent us to ultrasound, and while we were there IR called for us 3 times. Jason got a "little" aggravated, and shared this with the IR docs. I mean we can't be in 2 places at once. We then left ultrasound at noon, on our way to IR.

Then we finally get to IR, Natalie gets a IV put in her foot. She then gets some ketamine and is one HAPPY baby! Around 2 they take her in to put in a new tube. She got a bigger tube and we're hoping to keep this one in place for 6 more weeks.

She woke up in a pretty cranky mood, but she's also teething (in addition to all this tube stuff) so once she had a popsicle she was OK. They tell you not to give anything but clear liquids for a few hours, but she is SO HUNGRY when she comes out of sedation, so once released we went to McDonalds and she ate an entire happy meal. (I wonder where she gets her stubbornness!!!)